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I have scoliosis, have been using nippy 1 ventilator for 15 years, I am 45. I was changed to a nippy 3+ in March this year, Papworth are now saying that I probably need oxygen, I am rather upset about this, I was fine with my other ventilator for all those years without any oxygen, the Dr who I had never seen before said that my back had got worse, no proof of this, I have been going about every 2 months recently, oxygen was not mentioned when I asked why my oxygen had gone down! I am really annoyed too, I go back in September, oxygen would be such a pain as I go away a lot and go out and about too, I don't want to be housebound, its bad enough using the nippy without having oxygen as well, the Dr said I would need to use it 15 hours a day! My blood gases were about 69, they sent me home without even trying me on oxygen, I did say I didn't want it. I thought they could have tried it on me though if I really needed it!
I have scoliosis, have been using nippy 1 ventilator for 15 years, I am 45. I was changed to a nippy 3+ in March this year, Papworth are now saying that I probably need oxygen, I am rather upset about this, I was fine with my other ventilator for all those years without any oxygen, the Dr who I had never seen before said that my back had got worse, no proof of this, I have been going about every 2 months recently, oxygen was not mentioned when I asked why my oxygen had gone down! I am really annoyed too, I go back in September, oxygen would be such a pain as I go away a lot and go out and about too, I don't want to be housebound, its bad enough using the nippy without having oxygen as well, the Dr said I would need to use it 15 hours a day! My blood gases were about 69, they sent me home without even trying me on oxygen, I did say I didn't want it. I thought they could have tried it on me though if I really needed it!
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