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Hi, I've just this minute joined and thought I would ask if anyone else here with post polio syndrome has trouble getting to sleep and staying asleep. I have a scoliosis and reduced lung capacity, which has been getting worse over the years. For nearly a year I've been under severe stress and depression due to family matters and my sleep has really gone down the tubes. I've taken temazepam for years which used to work quickly and got me through the night, but during this stressful time it's not worked at all. It takes a good hour to get to sleep, then I wake up roughly every hour all through the night, usually about 6 times. I then need to drink water as my mouth feels so dry, which means I have to go to the loo once or twice a night as well. I never get a chance to have any deep, restful sleep, and wake up feeling shattered. I've just been put on a different tablet which is supposed to give me 7/8 hours' sleep, but it's made no difference. I've asked to be referred to a sleep clinic as I suspect I might need a CPAP machine - which I'm dreading - but if it gives me a good night's sleep it would be worth it. I know that many people with PPS do need CPAPs but hoped that I would be spared this.
Does anyone have a similar problem with PPS?
Hi, I've just this minute joined and thought I would ask if anyone else here with post polio syndrome has trouble getting to sleep and staying asleep. I have a scoliosis and reduced lung capacity, which has been getting worse over the years. For nearly a year I've been under severe stress and depression due to family matters and my sleep has really gone down the tubes. I've taken temazepam for years which used to work quickly and got me through the night, but during this stressful time it's not worked at all. It takes a good hour to get to sleep, then I wake up roughly every hour all through the night, usually about 6 times. I then need to drink water as my mouth feels so dry, which means I have to go to the loo once or twice a night as well. I never get a chance to have any deep, restful sleep, and wake up feeling shattered. I've just been put on a different tablet which is supposed to give me 7/8 hours' sleep, but it's made no difference. I've asked to be referred to a sleep clinic as I suspect I might need a CPAP machine - which I'm dreading - but if it gives me a good night's sleep it would be worth it. I know that many people with PPS do need CPAPs but hoped that I would be spared this.
Does anyone have a similar problem with PPS?
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