As I said, I think we are lucky where we live.
Our local hospital are pioneering a completely home based service. The two consultants, Dr. Phillipe Grunstein and Dr. Orion Twentyman, used to send patients down to Papworth Hospital for overnight inital sleep study, but they have teamed up with a company in Bognor Regis called Respironics. After an initial consultation with the specialist, where he basically asked the Epworth questions (which included, to my horror and surprise, questions regarding my husbands sexual morning habits!!) he said that my husband "ticked all the boxes" and needed a Sleep Study. The Co-ordinator faxed Respironics there and then, and Respironics phoned my husband that day and asked where he wanted the Stardust machine delivered. It arrived next day, and it went backwards and forwards for three attempts before a result.
Our next appointment was to be 31 August, but I phoned the Co-ordinator and had a few fractious tears (as I am suffering as well), because my husband is a hairdresser, and you can only imagine what damage a tired hairdresser could cause to a client! I was told that our consultant was on annual leave until then. The other consultant looked at the sleep study tests, called my husband, and the mask fitting and delivery of the CPAP was achieved in two days. Respironics send a new SIM card every six months, and request that you change the SIM and send the old one back for analysis. The results of your last six months are sent to the consultant ready for your next appointment.
I believe the two consultants had to fight every inch of the way to get the support of the local Trust and the NHS to get this off the ground, but they have succeeded and boy! does it work.
I am shocked that so many of you have to wait so long......
Jackie - I hope you get a result from your MP and the Regional Authority, I know the NHS are in dire straits but.....
I actually suggested on my fractious day that we went and bought a CPAP ourselves, and was told that it was not advisable as it could cause more harm than good as we would not know the settings.
As for sharing an appointment.... it smacks of the dark ages! It seems to me that your local NHS do not appreciate the importance of quality of sleep or life. I understand now why sleep deprivation is used as a form of torture.
Sorry for the long post, but it is really a relief to get my story as a partner of an OSA, off my chest. Promise other posts will not be so long!
Lovely forum site, and I am sure that we will have loads of questions in the future.