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 Post subject: Re: Do I need to tell the DVLA I have sleep apnoea?
PostPosted: Fri Feb 29, 2008 3:43 pm 
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Lieutenant Snorer

Joined: Sat Feb 23, 2008 11:20 pm
Posts: 83
I am amazed you have been able to get so sorted so quickly with so little help from the NHS. I hope you get along with the machine.l

I am not thrilled with the setting of my machine - I feel like I can't breathe freely as if there is not enough air - and my nose feels congested (despite regular Nasonex and occasional Lemsip) but I am persevering. I am waking up a lot because of the machine but I still don't feel as tired as without.

The clinic do not want to see me for four weeks so I don't know how I will stand for keeping my licence yet.

Keep breathing,

Martin Confused


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 Post subject: Re: i've told the dvla!!
PostPosted: Wed Mar 05, 2008 2:21 pm 
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Sergeant Snorer

Joined: Thu Feb 28, 2008 1:14 am
Posts: 44
hi - all, i've been waiting for the notification forms from the dvla - which haven't arrived yet - and i decided to give them a call to ask about them and the lady asked about the apnoea. i mentioned that i had started on cpap and she said that it was ok to carry on driving whilst they resend the forms and then made enquiries to the doctor.

what - does the left hand know what the right hands doing ?? Confused
crazy situation , has anybody else had this experience or any thing similar - can drive, can't drive , can drive etc etc
tony


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 Post subject: Re: Do I need to tell the DVLA I have sleep apnoea?
PostPosted: Wed Mar 05, 2008 10:50 pm 
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Lieutenant Snorer

Joined: Sat Feb 23, 2008 11:20 pm
Posts: 83
Hi,

As you can probably guess since I have just been diagnosed (Feb 4th) I have not had my license situation sorted yet. The DVLA were very nice and said keep driving if your doctors say its okay. My problem is my consultant very clearly said no driving until the therapy was set up on my machine and checked by them to be working, and me as being compliant.

When I contacted my insurers all they were interested in was how did the DVLA feel about it.

I have the DVLA questionnaire ready to send back but am waiting so when they contact the hospital I might have reached the month the consultant seemed to set as the time.

In the meantime my two motorbikes and car are not being used, and I am paying to be ferried to work and back.....

Martin


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 Post subject: Re: Do I need to tell the DVLA I have sleep apnoea?
PostPosted: Sat Mar 08, 2008 10:32 pm 
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Private Snorer

Joined: Sun Feb 17, 2008 2:26 pm
Posts: 5
Location: Portsmouth
Diagnosed in January, as soon as I had the written confirmation I went on line WWW.direct.gov.uk/motoring and completed the DVLA form, which had to go snail mail (although I think that was so they had my signature). Had a letter on the 14th Feb saying that I satisfied the medical conditions....they where actually very efficient and have an e mail address that may speed things up eftd@dvla.gsi.gov.uk this potential loss of licence must put many off going for diagnosis in the first place and I think it should be made clearer uner what circumstances the licence will be revoked.


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 Post subject: Re: Do I need to tell the DVLA I have sleep apnoea?
PostPosted: Sat Apr 05, 2008 10:08 am 
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Sergeant Snorer

Joined: Thu Feb 28, 2008 1:14 am
Posts: 44
hi all - finally got my letter form the DVLA today saying that i am allowed to contiue driving without any change to my license. Very Happy Very Happy Very Happy

feb 18th till April 5th - - - diagnosis to apap to confirmation of driving Very Happy - - lifetime of apap Sad

i think i'v been really blessed - even though i sorted my own machine and accessories out - with how quick this has all happened - even though it took a lot of prayer from freinds around me.

All i need to do now is to convince my consultant to pay for the rest of my therapy on the NHS - wouldn't originally do it as i have moderate osa - but then again NICE will have hopefully changed the rules by the time i go back to see him.

tony


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 Post subject: Re: Do I need to tell the DVLA I have sleep apnoea?
PostPosted: Mon Apr 14, 2008 8:55 pm 
diagnosed with OAS a month ago after finding a kip in the afternoon (retired) got me through the day.
No nodding off otherwise, certainly not at the wheel. Did what they told me and informed the DVLA.
Got my assessment and box of tricks today. Now I've got seven days trial and if I get on with it fine, if not tough luck but either way thay have to tell the DVLA, the implication being that I may lose my licence.

My point is that while I genuinly feel sorry for those younger folks who suffer from OAS and need treatment, if you are over sixty, snore a bit, like a kip in the afternoon, DON'T GO NEAR A SLEEP CLINIC. Before you say the DVLA is only trying to protect the public, I know drivers out there with every disability known to man, drivers on buckets of prescription drugs, drivers with altziemers, parkinsons, MS or 95 years of age and they still have a licence. It's time there were serious warnings in the press and by GP's about the REAL risks of reporting snoring. In the meantime the other half can sleep in the spare roomif they don't like the noise.


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 Post subject: Re: Do I need to tell the DVLA I have sleep apnoea?
PostPosted: Wed Apr 16, 2008 9:34 am 
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Major General Snorer

Joined: Sun Dec 11, 2005 10:26 pm
Posts: 870
Quote:
if you are over sixty, snore a bit, like a kip in the afternoon, DON'T GO NEAR A SLEEP CLINIC. Before you say the DVLA is only trying to protect the public, I know drivers out there with every disability known to man, drivers on buckets of prescription drugs, drivers with altziemers, parkinsons, MS or 95 years of age and they still have a licence.


I'm afraid that I cannot agree with your advice, dimwit. Even if you don't contact the DVLA, drive safely and don't have your licence withdrawn, you could still die before your time from a stroke or a heart attack brought on by your OSA.

Yes, there are shedloads of folk behind the wheel who shouldn't be, but managing your OSA is the best thing for your health and those around you, from partners who cannot stand hearing you snore to those injured or worse through your having an incident whilst driving.

Not treating your OSA if you know that you have it, means that you are unlikely to declare it on insurance policies or travel insurance policies, and thus invalidating your insurance because you had it at the time of taking out the policy and didn't declare it!

It is unlikely that you will be stopped from driving for a long time - once you have a machine and have a good level of compliance, the DVLA will give you permission to drive again.

It is irresponsible to drive when you have an untreated condition that threatens your life and those around you whatever the cause behind it.


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 Post subject: Re: Do I need to tell the DVLA I have sleep apnoea?
PostPosted: Wed Apr 16, 2008 6:10 pm 
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Captain Snorer

Joined: Sun Aug 08, 2004 9:34 pm
Posts: 107
Location: Erith, Kent
I agree with Alsacienne, it is very irresponsible not to treat OSA seriously. My other half said I shouldn't advise the DVLA or insurers but I did and I'm glad I did. Although I now have to pay a bit more on my travel insurance for the OSA (although funnily enough not for my other conditions!!!) it is a small price to pay for peace of mind that I, and anyone who I might injure if I was driving, are covered too.

To say that just because lots of other people are going untreated and driving whilst on prescription drugs etc does not mean that everyone should. I hate to think of what the consequences would be.

If all that is happening is that he snores a bit and only falls asleep for a nap in the afternoons then it doesn't sound like full blown OSA to me but I'd hate to take the risk and would definitely get it looked at.

Chris


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 Post subject: Re: Do I need to tell the DVLA I have sleep apnoea?
PostPosted: Fri Apr 18, 2008 9:29 pm 
Hi.I was diagnosed with sleep apnoea in december at my local hospital.The consultant there told me it was ok to drive,but i shouldnt drive long distance.In february i went along to a sleep clinic in Manchester .I was told by the consultant there dont drive if you feel sleepy ,if you do feel sleepy whilst driving pull over,he also informed me to let the DVLA know.So i informed them and i was told to surrender my licence, if i didnt do this they would take the licence off me ,and it would be harder for me to get it back.So i returned it on 23/02/2008.I explained to them that i was getting a cpap machine on the 7th april,the lad told me that once id got the machine, fax a D1form to him the day after along with the medical questionaire he would put it on file ,if i rang up the day after i would be sent a cover note to drive .So last tuesday this is what i did ,In the afternoon i got a phone call from a lady at DVLA stating that i had missed out 1 part ,was told to correct it and fax it again,while i was on the phone i asked her should i ring the day after like i had been told in the 1st place ,she went off the phone ,came back on and said that i had to have permission off my GP before i could drive.So last friday i went to the docs he said yes its ok to drive.As soon as i got in the car i rang them on my mobile,only to be told that my application had been rejected, as it has to be the original form and not a fax.I was fuming .I had been told by two different people to fax the form in .Having rang up again this tuesday to see if theyve received my form, ive been told not to ring again until next tuesday ,if im not offered a cover note to ask for one .After reading all these posts on here im not building my hopes up!.


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 Post subject: Re: Do I need to tell the DVLA I have sleep apnoea?
PostPosted: Sat Apr 19, 2008 1:25 pm 
Hi .Guess what, the mail came this morning looked at it ,thought its only junk mail so i decided to have my breakfast.Then when we had finished my hubby gave me the letter and yes ive got my licence back .I feel like jumping over the moon so does the hubby as he doesnt have to run me everywhere now .One word of advice to everyone ,when you have surrendered your licence,you can reapply for it back up to 8 weeks before you are due to get your cpap machine, i suggest you do this so it is already on file, then when you get your machine, just fill in the medical questionaire form and send it to the DVLA. via email.
big mama 2


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 Post subject: Re: Do I need to tell the DVLA I have sleep apnoea?
PostPosted: Sun Apr 20, 2008 1:07 pm 
OK ceejayblue but far too many liberties, freedoms and privilages are being taken away based on dodgy research, spurious information and mis-diagnosis. You could easily make a case banning every vehicle driver on this earth unless they have a regular "airline pilot type" medical.

How often is OSA proven to be the primary factor in road accidents, as opposed to a row with the boss, mobile phones, kids in the car, mother-in-law, the list goes on so lets ban them all. My complaint is that this OSA test is a handy "catch-all" with no further evidence required that the driver is a danger to road users. Assumptions as we all know are impossible to argue with.

On the personal benefit side I am really struggling. The CPAP kit is a classic case of the cure being worse than the disease. Anyone who claims to get a good nights sleep with that thing on their face is telling porkies or they must have been awake forever. Look, it might help some people but lets stop pretending that it's the finest thing since sliced bread.

Finally, the claim (assumption, because you can't prove the opposite) that it helps avoid strokes and heart attacks is questionable. We've all got to die of something but at least the choice is ours not some "jobs worth" in Swansea. Obviously the time is not far off when every vehicle will fitted with an alarm complete with smart card, that wakes you when you nod off, three bells and your out. That'll keep them busy at Swansea. In the meantime I think I will invest in CPAP shares.


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 Post subject: Re: Do I need to tell the DVLA I have sleep apnoea?
PostPosted: Sun Apr 20, 2008 4:24 pm 
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Major General Snorer

Joined: Sun Dec 11, 2005 10:26 pm
Posts: 870
Dimwit, I am quite horrified at what you posted.

Quote:
OK ceejayblue but far too many liberties, freedoms and privilages are being taken away based on dodgy research, spurious information and mis-diagnosis. You could easily make a case banning every vehicle driver on this earth unless they have a regular "airline pilot type" medical.


Well you can play the PC card or whinge about the taking away of your civil liberties or human rights as loudly as you wish, but as an OSA sufferer, diagnosed and treated or not, you have a responsibility to yourself and those around you to behave in a sensible and decent manner. I do not think that putting yourself and others at increased risk of injury or death is a responsible and mature approach to living.

Quote:
How often is OSA proven to be the primary factor in road accidents, as opposed to a row with the boss, mobile phones, kids in the car, mother-in-law, the list goes on so lets ban them all. My complaint is that this OSA test is a handy "catch-all" with no further evidence required that the driver is a danger to road users. Assumptions as we all know are impossible to argue with.


Many drivers admit to falling asleep at the wheel - or forensic pathologists diagnose this from their state at the time of death at an autopsy. Gruesome but true. Now whether this sleepiness was caused by OSA, too much alcohol in the bloodstream, a heavy meal, prescription or recreative medications doesn't matter. The sleepy state of the driver caused an accident, injuries and/or deaths. If you KNOW you have uncontrolled OSA, you know that you run a greater risk of falling asleep at inopportune moments than most of us, because you have a medication condition that is not being managed. If you are managing it - usually by compliance with your CPAP - your risk is reduced, but you can't count on other drivers to take responsibility for their lives and way of managing them.

Quote:
On the personal benefit side I am really struggling. The CPAP kit is a classic case of the cure being worse than the disease. Anyone who claims to get a good nights sleep with that thing on their face is telling porkies or they must have been awake forever. Look, it might help some people but lets stop pretending that it's the finest thing since sliced bread.


Now I think that this is the nub of the problem. I have been using a CPAP for the past 10 years, and admit that it was because of unacceptable daytime sleepiness which made me an unsafe driver (amongst other things) that led me to investigate my snoring and sleepiness. Luckily I didn't cause any injuries, but I gave a hired minibus (empty) a very rough time curled round a petrol pump, with a lot of damage to the metalwork and paint.

I have a permanent crater inbetween my eyes from my first mask. I wear this as a mark of my ignorance - I didn't know how to adjust the angle of the mask, I didn't know that there were other, more comfortable masks to be had, nor that I could have safely used a moisturising cream to combat the dryness of my skin caused by the mask.

I know exactly how horrible it feels, and how devastated one feels when one looks in a mirror or imagines it on one's face.

But with support, encouragement and perseverance, things DO get better. It takes time to adjust both physically and psychologically to wearing the mask, and to have a non-human bedside companion every night for the rest of your life. But there are so many more of us than you might think, because you can't see inside our bedrooms at night. Yes, it really is difficult to accept, because it feels so odd. But what becomes odd becomes normal as you persevere. Did you like your first glass of coca cola? I didn't but as a 60s child, I persisted because it was accepted! And the VERY first time you drove a car, I bet the back of your seat was wet with sweat when you got out! Yet we have a coca cola or pop down to the shops without a qualm now! And I'm sure you can think of many personal examples!

But it needs working at. You have to have a positive approach ....
Quote:
Finally, the claim (assumption, because you can't prove the opposite) that it helps avoid strokes and heart attacks is questionable.

........... but it has been medically proven that the lack of oxygen in your brain - which drops when you have an apnoea - can cause a heart attack or a stroke, because both the heart and the brain need a constant supply of oxygen which they get through the blood, and the oxygen gets into your bloodstream by your breathing.


Quote:
We've all got to die of something but at least the choice is ours

...... do you really want to contribute to your death? Think of the sadness that premature death or suicide brings to those closest to the person who dies. And surely life is good enough to want to live it for as long as you possibly can?

Quote:
Obviously the time is not far off when every vehicle will fitted with an alarm complete with smart card, that wakes you when you nod off, three bells and your out. That'll keep them busy at Swansea.


When I am deeply asleep I can't even respond to the door bell or the telephone, so chimes in my car, or even a dentist's drill whine wouldn't do anything for me!! But yes, I am sure technology will eventually produce an alarm ........ but there's no guarantee that the driver will respond to it ........ after all every car has a speedometer fitted, but that doesn't cause drivers to slow down automatically once it reaches 70 mph!

Quote:
In the meantime I think I will invest in CPAP shares.


Now that would be a good idea - but unless more people have the courage to face up to the fact that they have OSA, and are prepared to actively manage their condition, they won't necessarily have to increase production and sell more, so you may have to wait for a windfall dividend!


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 Post subject: Re: Do I need to tell the DVLA I have sleep apnoea?
PostPosted: Sun Apr 20, 2008 10:13 pm 
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Captain Snorer

Joined: Sun Aug 08, 2004 9:34 pm
Posts: 107
Location: Erith, Kent
Well said, Alsacienne!

If people don't take OSA seriously and act responsibly the effects on others could be catastrophic. Dimwit entitled to his opinion but not taking this condition seriously is foolhardy and irresponsible.

I have had my machine for around 4 years now and yes it is not comfortable to wear it, yes it leaves marks occasionally, hisses constantly and makes me look and sound like Darth Vader but it has saved my life. Before I had it I was a zombie and my quality of life was dreadful, work and homelife suffered. Now I can live a normal life and feel human again.

I hope that Dimwit can come to terms with the condition and get on with his machine eventually.


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 Post subject: Re: Do I need to tell the DVLA I have sleep apnoea?
PostPosted: Mon May 12, 2008 10:20 pm 
Update!
There are two issues here. your health and "elf & safety" Thank goodness that actions you take towards a healthy lifestyle are still personal choice, although I suspect it is only a matter of time before "elf & safety" control your life from cradle to grave. Just imagine what "they" would have made of two lumps of metal carrying human beings hurtling towards each other at a combined speed of 150mph with just a white line between them, when the automobile was invented. Never mind them enjoying a snooze in the afternoon.

Anyway, without banging on about the importance of danger & risk in the meaning of life, I have had my CPAP "trial" and sad to say it was a bit of a flop. Nights staring at the ceiling and absolutely exhausted after seven days. It seems I can't breath through my nose and when I did nod off I kept waking up in a panic at not being able to breath. Tried a full face mask in the hospital today, not much better. Now they are going to try something called a BIPAP.

On a brighter note there was this guy in the waiting room who like many of your forum contributions, said it had changed his life. So inspite of my apparent lack of enthusiam, I will persevere but in the meantime I am off sailing for five weeks in the Greek Islands where I intend as much "horizontal PT" as possible , having first omitted to give the DVLA my forwarding address.


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 Post subject: Re: Do I need to tell the DVLA I have sleep apnoea?
PostPosted: Tue May 13, 2008 7:03 am 
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Major General Snorer

Joined: Sun Dec 11, 2005 10:26 pm
Posts: 870
Have a lovely holiday dimwit and come back refreshed. You might like to try a mask called 'nasal pillows' or even a full face mask. It does take some time to adjust to using a mask and CPAP, and what you have described sounds rather normal. Please persevere, and keep in touch. Now enjoy your horizontality and don't over do the sun tan!! (More 'elf and safety for you!!!). Kind regards, Alsa


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