British Snoring & Sleep Apnoea Association

Hi im new to this sight,i have found it interesting reading other peoples problems.I have been using a cpap machine religiously for two years,i haven`t seen any change in my tiredness,when i go to the clinic they change the settings and still no change,i wondered if anyone else was having the same trouble.

Hiya. I have just arrived on to this site. i to have had no luck with CPAP machine. Have you had any more luck since.

No i`m still struggling but i might have underlying problems,i have an appointment at clinic next month hopefully it will be sorted out then.....

I have arnold Chiari Malformation. This may be the cause of, the few, central apneas i have. But i too am soooooo tired its daft, i am so forgetful and i have word finding trouble and memory probs. But hey ho, sound moany now. Hope they can help you.

Ray

Not seen you on here for a while.

Sorry to hear you are having problems. From my limited knowledg of cpap there are many problems. it could be leaks, mask type, pressure etc,

Maybe you should ask for a full sleep study to see what is going on.

Mac

MAC.
No i haven`t posted for a while simply because i wanted to get everything sorted with clinic first and didn`t want to keep posting negative things about my cpap without having the full details.... hope your all ok.. hows NM still misbehaving

Hey Ray ,

Good to see you back on the site ,i often wondered where you went to .
Sorry to hear things are not so good for you at the moment ,whats seems to be the problem with cpap ???

Me misbehave Im reformed and now adhere to the sites rules and regulations 100 % havent had a picture removed for a good few months

Good to see you back mate we just need Dr Leng now

Cya,

Ray

We need negative things on the site because cpap is not an easy journey.

New members or people just loking at this site would think. Get a cpap and the going will be easy.

As I have posted in the last few days and weeks. My own usage is just over 50%.

50% after 18 months is better than none at all. I remember the early days of wearing the thing for minutes and pulling it off.

This morning went to bed at 8-30am and got up at 2pm. NM37 said on the phone I sound tierd. To be honest I feel totally exhausted and not looking forward to the 8 hour shift tonight.

Ray keep posting and getting support

Mac

Thanks for the support nm and mac,
i`m still using cpap every night 5/6/ hours most nights.at best i wake up tired and disorientated at worst i feel like i`ve been hit by a train. three and a half years now and things are getting worse.
The clinic refused me another appontment,said i`d have to wait for my sheduled two yearly one (august), So im going armed with proof of my deterioration and gonna have a row
All the best...

Hi Ray.

When you go to the clinic tell them you wanna see the main man Bannerjee dont get the understudy .
Perhaps apap would be a better option for you ,keep a diary of events,how you are feeling each day etc for when you go it will be some proof to back your claims up .I honestly think they should be helping you a lot more .

Sock it to em Ray,




Cya,

Nice to see you back Ray and hope you get sorted 100% very soon.

hi ray , sorry to hear of your problems perhaps you should go back to your GP & tell of all your problems in the hope you can get a referal to another clinic , i have just done this & the quality of care is amazing . might be worth a try & nothing to loose , hope you find your answers b cool Derek

I am glad that your path is now heading upwards Derek! All good wishes and keep us posted.

Ray ,

Hows things going for you ???

Keep us posted mate .

Regards,