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Inadequately controlled sleep apnoea

Talk about all aspects of sleep apnoea. Request help from others with the same problem, tell your story, exchange tips & techniques ..
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Inadequately controlled sleep apnoea

Post by vometia » Mon Jun 05, 2017 1:22 pm

Not sure where's best to start with this, so I figured I should dive straight in!

I was diagnosed with OSA back in my 30s (I'm now 48) and was eventually taken in for a sleep study by the local sleep unit and given a Resmed CPAP machine about six months later. That's been pretty much the entirety of my history with the sleep clinic as there's been no follow-up to check that the treatment is actually working in spite of me asking several times and saying it hasn't been a great success, though my partner tells me at least I've stopped snoring, so that's something.

My sleep is marginally improved but it still sucks: I wake up very frequently and get up several times in the night. I'm aware that I'm still having some sort of apnoeas in that I frequently wake up in a panic gasping for breath and my gf has observed the same thing too: different to the OSA episodes, it's just as if I forget to breathe. I'm constantly exhausted during the day and it's had all sorts of other effects, the usual stuff like weight gain, diabetes, high blood pressure, heart attack, depression etc which apart from the diabetes which is mitigated with diet and exercise are completely resistant to any attempts to treat them. I guess unsurprisingly.

We're in the process of trying to hassle the sleep clinic to actually monitor the situation but it seems that it's going the way of previous attempts and I've largely given up hope that they'll help. They were going to loan me a monitor a few months ago to see if I was actually breathing since I have a "brick" (currently a Resmed S9 Escape: they eventually replaced the previous machine when I somehow wangled an appointment about three years ago and told me it had stopped working about five years previously) but it never happened and my GP's attempts to get them to do something about it have still come to nothing. I did manage to see a consultant last summer (first time after being a patient for over a decade!) who just glibly told me there was nothing medical science could do for me, which struck me as rather defeatist.

I'm currently taking zopiclone in divided doses, one at 9:30pm, the other at 2am, which is of questionable usefulness but it does at least seem to mitigate the constant panic attacks I get during the night: sleeping is a pretty hellish experience otherwise. My "sleep hygiene" is otherwise pretty good, I stick to a schedule, don't drink caffeine after 2pm, don't eat late, go to bed at about 10pm, don't associate my bedroom with anything but sleep (well, okay, I only really associate it with insomnia), I exercise most days and so on. I'm not sure there's anything else I can do to mitigate the problems myself.

Anybody got any suggestions? I'm half inclined to just get a better machine from Resmed or someone but I kinda wilted when I saw the prices so I'd need to know it stands a chance of working before I bankrupt myself...


Re: Inadequately controlled sleep apnoea

Post by Guest » Mon Jul 10, 2017 9:01 pm

Hi Vometia,

I am sorry that you are having such a terrible experience. I am a Registered Respiratory Therapist who works in a CPAP clinic in Canada. I am curious if you are on an Auto or Standard machine right now. You need to either go back to your provider and demand service, or go to a different company. I would suggest that you need to do something called an "Automatic CPAP Reassessment" on a newer machine that records data. I highly doubt that your CPAP settings are correct right now.

Good luck!

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Re: Inadequately controlled sleep apnoea

Post by Sleep2Snore » Tue Jul 18, 2017 10:46 pm

Asthma might be the problem if you have it, but it could also be central sleep apnoea. When the brain forgets to tell your body to breath.
This is a bit harder to treat, so you need to see a specialist. If your machine now has a data card you can download Sleepyhead software to see what is going on. Instructions are on the download page.
S2S - Sleep2Snore

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