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Suspected Central Sleep Apnea ..can any one advise?

Talk about all aspects of sleep apnoea. Request help from others with the same problem, tell your story, exchange tips & techniques ..
sixstringsting1
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Joined: Sat Jul 08, 2017 11:33 pm

Suspected Central Sleep Apnea ..can any one advise?

Post by sixstringsting1 » Wed Jul 19, 2017 3:36 am

Hi Guys,

Last year I was diagnosed with Sleep Apnea after a home study PSG was carried out. The consultant had done a few initial tests for my airways and I seen An ENT specialist all of which came back with perfectly normal airways and no signs of blockage or obstruction.. Over the case of year I have developed daily tremors in my left hand and had two episodes that were confirmed as seizures.

I have since been referred to Neurology although despite my concern following the seizures (having no previous experience before this year) I am waiting for them to get back to me. I now highly suspect that my sleep Apnea is central and of neurological origin. I have been videotaped by a family member sleeping and I do indeed have periods where my breathing stops completely..No snoring, no choking, just a complete cessation of breath and chest movement and then a series of deep breaths starting the cycle again. I will of course show this footage to consultant but can anyone make sense of this as Obstruction was likely but not confirmed cause of my Apnea?

Thank you for reading guys

Daniel

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Sleep2Snore
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Joined: Tue Oct 14, 2008 10:20 pm
Location: Aberdeenshire

Re: Suspected Central Sleep Apnea ..can any one advise?

Post by Sleep2Snore » Wed Jul 19, 2017 8:20 pm

Hi Daniel,
You didn't say what became of your sleep study? Did you get a machine or not? Are you waiting for them to see you?
I trust it is the Neurology that you are waiting to hear from? The reason I ask is it can take so long for some hospitals to get back to you.
The ENT will just check if there are any problems and send you usually to the chest clinic for Sleep Tests, depends how your hospital has set things up.
You may be suffering from Central Apnoeas, but they usually come with OSA as well, but not always.
Sleep Apnoea has this habit of coming along with other things and other dangers if not treated.
As you have developed a tremor, it may be neurological. Do take the footage with you, but they may not look at it there and then.
If you can leave them a copy there is more chance of them looking at it.
I have the odd event where my breathing just slows up and then just stops, sometimes when I am almost asleep.
Then I realise what is going on and jump into life gasping for breath, however it is mostly OSA I suffer from, but it does give me a fright when this happens.
Hope they are not long in getting you sorted, the only way they will know for sure is to do a Hospital polysomnography.where your breathing, sleeping, heart rate, and brain activity is all monitored along with a few other things.

Good luck, insist on a polysomnography.as it is the only sure way of testing you properly.
Though home tests are getting better, there is no substitute for the full equipment with someone observing what happens when you sleep.

Let us know how you get on.
S2S - Sleep2Snore

sixstringsting1
Private Snorer
Posts: 5
Joined: Sat Jul 08, 2017 11:33 pm

Re: Suspected Central Sleep Apnea ..can any one advise?

Post by sixstringsting1 » Thu Jul 20, 2017 11:19 pm

Thank you very much for reply

I am waiting to see Respiratory consultant and with the seizure occurring more than once I am awaiting to hear from Neurology. I had been trialed with a CPAP after sleep apnea diagnosis although I had no notable improvement in sleep or rest with it over the months I tried it.

its been a long and slow process and I dont have resource to go private but hope the combination of neurology and respiratory can help. Seizures have tended to start at onset of sleep and I have difficulty getting to this point as have difficulty getting to sleep, I think your suggestion of a hospital PSG would be helpful thank you

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Sleep2Snore
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Joined: Tue Oct 14, 2008 10:20 pm
Location: Aberdeenshire

Re: Suspected Central Sleep Apnea ..can any one advise?

Post by Sleep2Snore » Tue Jul 25, 2017 2:31 pm

A PSG would let them know what is going on and if it is a mental problem or not.
A CPAP is not always the right machine for everyone, sometimes you might need an APAP or even Bi-PAP, however a PSG might help show up what is going on as they also have sensors attached to your head.

Good luck, let us know how you get on.
S2S - Sleep2Snore

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